Neuro-QoL is a measurement system that evaluates and monitors the physical, mental, and social effects experienced by adults and children living with a neurological condition. The development and initial validation was funded by the National Institutes of Health (NIH) and the National Institute of Neurological Disorders and Stroke (NINDS). The administration can be done in multiple forms, either as static short forms or by computer adapted testing.
The domains for adult assessment include physical, mental, and social health (see Table). “This is a very positive step in the overall approach to assess patient-reported outcomes”, Dr Deborah Miller (Cleveland Clinic, OH, USA) mentioned. “We are not only looking at the negative consequences of symptoms, but also at the positive results of improvements in patient functioning.”
Table. Domains for adult assessment in Neuro-QoL
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Table of Contents: ECTRIMS 2019
Towards a Comprehensive Assessment of MS Course
Monitoring and Treatment of Progressive MS
Optimising Long-Term Benefit of MS Treatment
Safety Assessment in the Post-Approval Phase
Pregnancy in the Treatment Era
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